In-depth guides written by the Centre on medications, exercise, diet, and daily living, plus the organisations that lead myositis education worldwide.
A short guide to dermatomyositis, polymyositis, IBM, necrotizing myopathy, and antisynthetase syndrome, and why the type shapes treatment.
Understanding myositis →Detailed guides to each medication used at the Centre: risks, benefits, monitoring, and printable handouts.
Open the medication guides →Why movement is part of myositis care, how to stay safe, and free videos and exercise sheets.
Open the exercise guide →How food supports muscle repair and offsets medication effects, with two downloadable recipe guides.
Open the nutrition guide →Daily habits on immunosuppressive treatment: infection, vaccines, bones, skin, and managing energy.
Open the lifestyle guide →These are established, reputable organisations. Information on external sites is for education and does not replace advice from your own care team.
A key partner in the assessment and management of lung disease related to connective tissue disease and myositis.
Patient education materials on lung and breathing conditions, from the UHN Patient & Family Education Program.
National volunteer organisation supporting Canadians affected by myositis, with awareness and research funding.
The largest myositis patient organisation. Runs the MyoCon conference, dozens of free webinars a year, and a downloadable library.
A patient-led non-profit with online support groups, video sessions, and a large exercise resource.
Clear disease education across the inflammatory myopathies, reviewed by academic specialists.
The UK charity specific to the inflammatory myopathies, with plain-language information on every subtype.
A leading academic myositis centre. Disease-education pages and video series covering every subtype.
Focused on inclusion body myositis, with practical guidance on living with and exercising in IBM.
The national research network for myositis in Canada, for patients who want to follow the science.
Listing an organisation is not an endorsement of any product, treatment, or fundraising campaign it may feature. Always discuss what you read with your Centre team.
Rehabilitation at the Centre follows the V.i.P Protocol (Vinik-Papachristos), a phased program built for inflammatory myopathy and delivered virtually through Arthros and its FlareForward platform.
Read about the protocol on the Arthros V.i.P page, or see the patient overview of FlareForward.