Movement is now understood to be a core part of myositis care, done the right way and at the right time. Here is the fuller picture, the principles that keep it safe, and free resources to explore with your team.
For many years patients were told to rest and avoid exercise. Research has since shown that appropriately guided exercise is safe in myositis and helps maintain strength, function, and stamina. Studies of resistance and aerobic training in dermatomyositis, polymyositis, and inclusion body myositis have shown improved function without signs of increased muscle inflammation. For inclusion body myositis in particular, exercise matters most, because IBM does not respond to medication.
The right program depends on your subtype, your current strength, and whether your disease is active or settled. That is what a structured, phased approach is for. At the Centre, rehabilitation follows the V.i.P Protocol, with progression guided by defined criteria rather than guesswork, and delivered virtually through Arthros so much of it can happen from home.
Most myositis exercise plans combine four elements, dosed to your ability and stage.
Gentle stretching to keep joints and weakening muscles from stiffening. Most effective at the end of a session when you are warm.
Resistance work for the hip, thigh, and shoulder muscles that myositis tends to weaken, built up gradually.
Walking, cycling, or swimming to rebuild stamina and cardiovascular health, which weakness and fatigue erode.
Balance and coordination work to reduce falls, since weak thighs and hips affect stability.
General guidance only. Your own plan should be set with your doctor and physiotherapist.
Reputable, free exercise resources built for myositis patients. Review them with your physiotherapist.
Check with your team before starting anything new. Only you, your doctor, and your physiotherapist can decide what is safe for you. Stop and seek medical advice if you develop chest pain or unexpected shortness of breath.