Nintedanib slows lung scarring and is added alongside your immune treatment, not instead of it. Loose stools are common and manageable.
Nintedanib is an antifibrotic medication. Unlike the others here, it does not suppress the immune system. It slows the scarring of lung tissue and is approved for progressive fibrosing interstitial lung disease and for systemic-sclerosis lung disease. When myositis-related lung disease keeps scarring despite immune treatment, it may be added to slow the decline in lung function. It works alongside your immune medications.
Shown to slow the loss of lung capacity in progressive fibrosing lung disease.
Adds an antifibrotic effect to your existing medications, not a replacement.
Taken as a capsule at home.
Approved and widely used across several fibrosing lung diseases.
Your doctor prescribed this because the expected benefits outweigh the risks for your situation. Here is the honest, full picture.
Nintedanib can harm an unborn baby and must not be used in pregnancy. Use effective contraception during treatment and for a period after stopping, as advised. Tell your doctor if you are pregnant or planning.
This guide is for education, not medical advice. Myositis treatment is individual, and many of these medications are used based on specialist experience and evidence rather than a formal Canadian myositis indication. Never start, stop, or change a medication without your own doctor. Your doses and choices are decided with your care team at the Centre.